Measuring What Matters to Individuals with Angelman Syndrome and Their Families: Development of a Patient-Centered Disease Concept Model
Titel:
Measuring What Matters to Individuals with Angelman Syndrome and Their Families: Development of a Patient-Centered Disease Concept Model
Auteur:
Willgoss, Tom Cassater, Daiana Connor, Siobhan Krishnan, Michelle L. Miller, Meghan T. Dias-Barbosa, Carla Phillips, Dawn McCormack, Julie Bird, Lynne M. Burdine, Rebecca D. Claridge, Sharon Bichell, Terry Jo