Patient- and family-oriented outcomes for inborn errors of metabolism: The perspective of patient advocacy and support groups
Titel:
Patient- and family-oriented outcomes for inborn errors of metabolism: The perspective of patient advocacy and support groups
Auteur:
Khangura, Sara D. Chakraborty, Pranesh Coyle, Doug Kronick, Jonathan B. Laberge, Anne-Marie Little, Julian Miller, Fiona Mitchell, John J. Prasad, Chitra Siriwardena, Komudi Sparkes, Rebecca Speechley, Kathy N. Stockler, Sylvia Tingley, Kylie Trakadis, Yannis Wilson, Brenda Wilson, Kumanan Potter, Beth K.