Patient- and family-oriented outcomes for inborn errors of metabolism: A scoping review
Titel:
Patient- and family-oriented outcomes for inborn errors of metabolism: A scoping review
Auteur:
Khangura, Sara D. Chakraborty, Pranesh Coyle, Doug Karaceper, Maria D. Kronick, Jonathan B. Laberge, Anne-Marie Little, Julian Miller, Fiona Mitchell, John J. Prasad, Chitra Siriwardena, Komudi Sparkes, Rebecca Speechley, Kathy N. Stockler, Sylvia Tingley, Kylie Trakadis, Yannis Wilson, Brenda Wilson, Kumanan Zayed, Reem Potter, Beth K.