Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)
Titel:
Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)
Auteur:
Ramaswami, Uma Stull, Donald E Parini, Rossella Pintos-Morell, Guillem Whybra, Catharina Kalkum, Gisela Rohrbach, Marianne Raluy-Callado, Mireia Beck, Michael Chen, Wen-Hung Wiklund, Ingela on behalf of the FOS Investigators