Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe
Title:
Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe
Author:
Péntek, Márta Gulácsi, László Brodszky, Valentin Baji, Petra Boncz, Imre Pogány, Gábor López-Bastida, Julio Linertová, Renata Oliva-Moreno, Juan Serrano-Aguilar, Pedro Posada-de-la-Paz, Manuel Taruscio, Domenica Iskrov, Georgi Schieppati, Arrigo Schulenburg, Johann Matthias Graf von der Kanavos, Panos Chevreul, Karine Persson, Ulf Fattore, Giovanni