Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs
Titel:
Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs
Auteur:
Warnink-Kavelaars, Jessica Beelen, Anita Goedhart, Tine M. H. J. Koning, Lisanne E. de Nollet, Frans Alsem, Mattijs W. Menke, Leonie A. Engelbert, Raoul H. H.