The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases
Titel:
The Role of the European Reference Network for Rare Bone Diseases (ERN BOND) and European Registries for Rare Bone and Mineral Conditions (EuRR-Bone) in the Governance of the Management of Rare Bone and Mineral Diseases
Auteur:
Priego Zurita, Ana Luisa Boarini, Manila Casareto, Lorena Cherenko, Mariya Mordenti, Marina Moroni, Alice Ahmed, S. Faisal Appelman-Dijkstra, Natasha M. Sangiorgi, Luca