Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome
Titel:
Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome
Auteur:
Werner-Lin, Allison Khincha, Payal P. Thompson, Ashley S. Rising, Camella Sleight, Alix Wilsnack, Catherine Boyd, Patrick Feldman, Alexandra Shepherd, Rowan Forbes Savage, Sharon A.