Caregiver burden, and parents' perception of disease severity determine health-related quality of life in paediatric patients with intoxication-type inborn errors of metabolism
Titel:
Caregiver burden, and parents' perception of disease severity determine health-related quality of life in paediatric patients with intoxication-type inborn errors of metabolism
Auteur:
Bösch, Florin Landolt, Markus A. Baumgartner, Matthias R. Fernandez, Susana Forny, Patrick Gautschi, Matthias Grünert, Sarah C. Häberle, Johannes Horvath, Carolina Karall, Daniela Lampis, Danila Rohrbach, Marianne Scholl-Bürgi, Sabine Szinnai, Gabor Huemer, Martina