If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD)
Titel:
If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD)
Auteur:
Hilbert, James E. Kissel, John T. Luebbe, Elizabeth A. Martens, William B. McDermott, Michael P. Sanders, Donald B. Tawil, Rabi Thornton, Charles A. Moxley III, Richard T.