The experience of clinical study and trial participation in rare diseases: A scoping review of centronuclear myopathy and other neuromuscular disorders
Titel:
The experience of clinical study and trial participation in rare diseases: A scoping review of centronuclear myopathy and other neuromuscular disorders
Auteur:
Stinissen, Lizan Bouma, Sietse Böhm, Johann van Tienen, Jeno Fischer, Holger Hughes, Zak Lennox, Anne Ward, Erin Wood, Marie Foley, A. Reghan Oortwijn, Wija Jungbluth, Heinz Voermans, Nicol C.