| nr |
titel |
auteur |
tijdschrift |
jaar |
jaarg. |
afl. |
pagina('s) |
type |
| 1 |
Accounting for Scale Heterogeneity in Healthcare-Related Discrete Choice Experiments when Comparing Stated Preferences: A Systematic Review
|
Wright, Stuart J.
|
|
2018
|
|
5 |
p. 475-488
|
artikel
|
| 2 |
A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy
|
Crossnohere, Norah L.
|
|
|
|
5 |
p. 577-588
|
artikel
|
| 3 |
Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life
|
Coast, Joanna
|
|
2018
|
|
5 |
p. 539-546
|
artikel
|
| 4 |
Addressing Medicaid Expansion from the Perspective of Patient Experience in Hospitals
|
Liu, Sandra S.
|
|
2016
|
|
5 |
p. 445-455
|
artikel
|
| 5 |
A Framework for Instrument Development of a Choice Experiment: An Application to Type 2 Diabetes
|
Janssen, Ellen M.
|
|
2016
|
|
5 |
p. 465-479
|
artikel
|
| 6 |
Analysis of Clinical Trial Exit Interview Data in Patients with Treatment-Resistant Depression
|
Lewis, Sandy
|
|
2019
|
|
5 |
p. 527-537
|
artikel
|
| 7 |
A New Approach to Assessing Children’s Interpretation of Severity Qualifiers in a Multi-Attribute Utility Instrument–The EQ-5D-Y-5L: Development and Testing
|
Derrett, Sarah
|
|
|
|
5 |
p. 591-600
|
artikel
|
| 8 |
A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
|
Addario, Bonnie
|
|
|
|
5 |
p. 415-423
|
artikel
|
| 9 |
A Patient-Centered Description of Severe Asthma: Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR)
|
Winders, Tonya A.
|
|
2019
|
|
5 |
p. 539-549
|
artikel
|
| 10 |
Beliefs and Values About Gene Therapy and In-Utero Gene Editing in Patients with Hemophilia and Their Relatives
|
Vasquez-Loarte, Tania C.
|
|
|
|
5 |
p. 633-642
|
artikel
|
| 11 |
Cognitive Testing of an Electronic Version of the Faces Pain Scale-Revised with Pediatric and Adolescent Sickle Cell Patients
|
Gupta, Neehar
|
|
2016
|
|
5 |
p. 433-443
|
artikel
|
| 12 |
Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey
|
Grauman, Åsa
|
|
|
|
5 |
p. 649-660
|
artikel
|
| 13 |
Computer-Based Clinical Decision Support Systems and Patient-Reported Outcomes: A Systematic Review
|
Blum, David
|
|
2014
|
|
5 |
p. 397-409
|
artikel
|
| 14 |
Consumers and Carers Versus Pharmacy Staff: Do Their Priorities for Australian Pharmacy Services Align?
|
McMillan, Sara S.
|
|
2014
|
|
5 |
p. 411-422
|
artikel
|
| 15 |
Correction to: Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study
|
Jimenez-Moreno, A. Cecilia
|
|
|
|
5 |
p. 693
|
artikel
|
| 16 |
Correction to: Prioritization and Refinement of Patient-Informed Value Elements as Attributes for Chronic Obstructive Pulmonary Disease Treatment Preferences
|
Slejko, Julia F.
|
|
|
|
5 |
p. 691
|
artikel
|
| 17 |
Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices
|
Webb, Edward J. D.
|
|
|
|
5 |
p. 457-471
|
artikel
|
| 18 |
Deliberative Engagement Methods for Patient-Centered Outcomes Research
|
Morain, Stephanie R.
|
|
2017
|
|
5 |
p. 545-552
|
artikel
|
| 19 |
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
|
Coombes, Lucy
|
|
|
|
5 |
p. 473-483
|
artikel
|
| 20 |
Determinants of Health Preferences Using Data from the Egyptian EQ-5D-5L Valuation Study
|
Al Shabasy, Sahar
|
|
|
|
5 |
p. 589-598
|
artikel
|
| 21 |
Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis
|
Pham, Phu Duy
|
|
|
|
5 |
p. 515-536
|
artikel
|
| 22 |
Development and Pretesting of a Questionnaire to Assess Patient Experiences and Satisfaction with Medications (PESaM Questionnaire)
|
Kimman, Merel L.
|
|
2017
|
|
5 |
p. 629-642
|
artikel
|
| 23 |
Development and Psychometric Evaluation of the Hypoglycemia Perspectives Questionnaire in Patients with Type 2 Diabetes Mellitus
|
Kawata, Ariane K.
|
|
2016
|
|
5 |
p. 395-407
|
artikel
|
| 24 |
Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study
|
Doward, Lynda C.
|
|
|
|
5 |
p. 533-543
|
artikel
|
| 25 |
Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instruments
|
Taylor, Fiona
|
|
2016
|
|
5 |
p. 409-418
|
artikel
|
| 26 |
Discordance Between Advanced Cancer Patients’ Perceived and Preferred Roles in Decision Making and its Association with Psychological Distress and Perceived Quality of Care
|
Ozdemir, Semra
|
|
|
|
5 |
p. 581-589
|
artikel
|
| 27 |
Do Non-participants at Screening have a Different Threshold for an Acceptable Benefit–Harm Ratio than Participants? Results of a Discrete Choice Experiment
|
Hansen, Tina Birgitte
|
|
2019
|
|
5 |
p. 491-501
|
artikel
|
| 28 |
Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis
|
Elliott, Jacobi
|
|
2016
|
|
5 |
p. 383-393
|
artikel
|
| 29 |
Erratum to: Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases
|
Purks, Jennifer L.
|
|
2017
|
|
5 |
p. 667-668
|
artikel
|
| 30 |
Experiences and Perspectives of Patients with Non-HIV-Associated Lipodystrophies and Their Caregivers: A Qualitative Study
|
Gomes, Aparna
|
|
|
|
5 |
p. 673-685
|
artikel
|
| 31 |
Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain
|
Estévez-Carrillo, Anabel
|
|
|
|
5 |
p. 521-535
|
artikel
|
| 32 |
Exploring the Preferences of the Australian Public for Antibiotic Treatments: A Discrete Choice Experiment
|
Degeling, Chris
|
|
|
|
5 |
p. 555-567
|
artikel
|
| 33 |
Factors That Patients Consider in Their Choice of Non-Surgical Management for Hip and Knee Osteoarthritis: Formative Qualitative Research for a Discrete Choice Experiment
|
Kennedy, Bryanne L.
|
|
|
|
5 |
p. 537-550
|
artikel
|
| 34 |
Feasibility of Measuring Preferences for Chemotherapy Among Early-Stage Breast Cancer Survivors Using a Direct Rank Ordering Multicriteria Decision Analysis Versus a Time Trade-Off
|
Panattoni, Laura
|
|
|
|
5 |
p. 557-566
|
artikel
|
| 35 |
Health Literacy: The Common Denominator of Healthcare Progress
|
Pitts, Peter J.
|
|
|
|
5 |
p. 455-458
|
artikel
|
| 36 |
Health-Related Quality of Life in Chronic HCV-Infected Patients Switching to Pegylated-Interferon-Free Regimens (ANRS CO20 CUPIC Cohort Study and SIRIUS Trial)
|
Carrieri, Maria Patrizia
|
|
|
|
5 |
p. 605-614
|
artikel
|
| 37 |
Health-Related Quality of Life in Chronic HCV-Infected Patients Switching to Pegylated-Interferon-Free Regimens (ANRS CO20 CUPIC Cohort Study and SIRIUS Trial)
|
Carrieri, Maria Patrizia
|
|
2017
|
|
5 |
p. 605-614
|
artikel
|
| 38 |
How Well Can Analytic Hierarchy Process be Used to Elicit Individual Preferences? Insights from a Survey in Patients Suffering from Age-Related Macular Degeneration
|
Danner, Marion
|
|
2016
|
|
5 |
p. 481-492
|
artikel
|
| 39 |
Humanization of Care: Key Elements Identified by Patients, Caregivers, and Healthcare Providers. A Systematic Review
|
Busch, Isolde M.
|
|
2019
|
|
5 |
p. 461-474
|
artikel
|
| 40 |
Humanization of Care: Key Elements Identified by Patients, Caregivers, and Healthcare Providers. A Systematic Review
|
Busch, Isolde M.
|
|
|
|
5 |
p. 461-474
|
artikel
|
| 41 |
Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies
|
Barthold, Douglas
|
|
|
|
5 |
p. 513-520
|
artikel
|
| 42 |
Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates
|
Oehrlein, Elisabeth M.
|
|
|
|
5 |
p. 687-690
|
artikel
|
| 43 |
Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases
|
Purks, Jennifer L.
|
|
2017
|
|
5 |
p. 541-544
|
artikel
|
| 44 |
Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children’s Involvement and Qualitative Methods
|
Gale, Victoria
|
|
|
|
5 |
p. 425-456
|
artikel
|
| 45 |
Instrument Development in Choice Experiments. Commentary on: “Applying a Framework for Instrument Development of a Choice Experiment to Measure Treatment Preferences in Type 2 Diabetes”
|
Wittenberg, Eve
|
|
2016
|
|
5 |
p. 379-381
|
artikel
|
| 46 |
Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds
|
Groothuis-Oudshoorn, Catharina G. M.
|
|
2018
|
|
5 |
p. 463-466
|
artikel
|
| 47 |
Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID
|
Ziegler, Sarah
|
|
|
|
5 |
p. 565-576
|
artikel
|
| 48 |
Mapping the Chinese Version of the EORTC QLQ-BR53 Onto the EQ-5D-5L and SF-6D Utility Scores
|
Liu, Tong
|
|
|
|
5 |
p. 537-555
|
artikel
|
| 49 |
Measurement Properties of the 15-Item Singapore Caregiver Quality of Life Scale (SCQOLS-15) in Family Caregivers of Patients with Heart Diseases
|
Gandhi, Mihir
|
|
|
|
5 |
p. 485-495
|
artikel
|
| 50 |
Measuring the Preferences of Homeless Women for Cervical Cancer Screening Interventions: Development of a Best–Worst Scaling Survey
|
Wittenberg, Eve
|
|
2015
|
|
5 |
p. 455-467
|
artikel
|
| 51 |
Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project
|
Smith, Ian P.
|
|
|
|
5 |
p. 449-453
|
artikel
|
| 52 |
Outcome-Based Payment Schemes: What Outcomes Do Patients with Cancer Value?
|
Lorgelly, Paula
|
|
|
|
5 |
p. 599-610
|
artikel
|
| 53 |
Patient and Public Involvement Refines the Design of ProtOeus: A Proposed Phase II Trial of Proton Beam Therapy in Oesophageal Cancer
|
Nicholas, Owen J.
|
|
|
|
5 |
p. 545-553
|
artikel
|
| 54 |
Patient Centeredness in Hepatitis C Direct-Acting Antiviral Treatment Delivery to People Who Inject Drugs: A Scoping Review
|
Abdelwadoud, Moaz
|
|
|
|
5 |
p. 471-484
|
artikel
|
| 55 |
Patient-Evaluated Quality of Care is Related to Better Inflammatory Bowel Disease Outcomes: The IQCARO II Project
|
Calvet, Xavier
|
|
|
|
5 |
p. 625-634
|
artikel
|
| 56 |
Patient Experience of Symptoms and Side Effects when Treated with Osimertinib for Advanced Non-Small-Cell Lung Cancer: A Qualitative Interview Substudy
|
Rydén, Anna
|
|
2017
|
|
5 |
p. 593-603
|
artikel
|
| 57 |
Patient Experience with Congenital (Hereditary) Thrombotic Thrombocytopenic Purpura: A Conceptual Framework of Symptoms and Impacts
|
Oladapo, Abiola O.
|
|
2019
|
|
5 |
p. 503-512
|
artikel
|
| 58 |
Patient Perceptions Regarding Multiple Myeloma and Its Treatment: Qualitative Evidence from Interviews with Patients in the United Kingdom, France, and Germany
|
He, Jianming
|
|
|
|
5 |
p. 613-623
|
artikel
|
| 59 |
Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations
|
Simon, Amy
|
|
2018
|
|
5 |
p. 527-537
|
artikel
|
| 60 |
Patient Preferences for Managing Insomnia: A Discrete Choice Experiment
|
Cheung, Janet M. Y.
|
|
2018
|
|
5 |
p. 503-514
|
artikel
|
| 61 |
Patient Preferences for Pain Management in Advanced Cancer: Results from a Discrete Choice Experiment
|
Meads, David M.
|
|
2017
|
|
5 |
p. 643-651
|
artikel
|
| 62 |
Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study
|
Jimenez-Moreno, A. Cecilia
|
|
|
|
5 |
p. 601-612
|
artikel
|
| 63 |
Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA
|
Janssens, Rosanne
|
|
2019
|
|
5 |
p. 513-526
|
artikel
|
| 64 |
Patient Preferences of Low-Dose Aspirin for Cardiovascular Disease and Colorectal Cancer Prevention in Italy: A Latent Class Analysis
|
Tervonen, Tommi
|
|
|
|
5 |
p. 661-672
|
artikel
|
| 65 |
Patient-Reported Outcome Measures in Atopic Dermatitis and Chronic Hand Eczema in Adults
|
Barrett, Amy
|
|
2019
|
|
5 |
p. 445-459
|
artikel
|
| 66 |
Patient-Reported Symptoms Over 48 Weeks Among Participants in Randomized, Double-Blind, Phase III Non-inferiority Trials of Adults with HIV on Co-formulated Bictegravir, Emtricitabine, and Tenofovir Alafenamide versus Co-formulated Abacavir, Dolutegravir, and Lamivudine
|
Wohl, David
|
|
2018
|
|
5 |
p. 561-573
|
artikel
|
| 67 |
Patient-Reported Symptoms over 48 Weeks in a Randomized, Open-Label, Phase 3b Non-inferiority Trial of Adults with HIV Switching to Coformulated Elvitegravir, Cobicistat, Emtricitabine, and Tenofovir DF Versus Continuation of Ritonavir-Boosted Protease Inhibitor with Emtricitabine and Tenofovir DF
|
Gathe, Joseph
|
|
2015
|
|
5 |
p. 445-454
|
artikel
|
| 68 |
Patients’ Preferences for Outcome, Process and Cost Attributes in Cancer Treatment: A Systematic Review of Discrete Choice Experiments
|
Bien, Daniela R.
|
|
2017
|
|
5 |
p. 553-565
|
artikel
|
| 69 |
Perceived Benefits and Facilitators and Barriers to Providing Psychosocial Interventions for Informal Caregivers of People with Rare Diseases: A Scoping Review
|
Rice, Danielle B.
|
|
|
|
5 |
p. 471-519
|
artikel
|
| 70 |
Perspectives of Pediatric Rheumatologists on Initiating and Tapering Biologics in Patients with Juvenile Idiopathic Arthritis: A Formative Qualitative Study
|
Currie, Gillian R.
|
|
|
|
5 |
p. 599-609
|
artikel
|
| 71 |
Preferences for Adjuvant Immunotherapy in Adults with Resected Stage III Melanoma—A Discrete Choice Experiment
|
Livingstone, Ann
|
|
|
|
5 |
p. 497-513
|
artikel
|
| 72 |
Preferences of People Living with HIV for Long-Acting Antiretroviral Treatment in Germany: Evidence from a Discrete Choice Experiment
|
Emmert, Martin
|
|
|
|
5 |
p. 537-553
|
artikel
|
| 73 |
Prioritization and Refinement of Patient-Informed Value Elements as Attributes for Chronic Obstructive Pulmonary Disease Treatment Preferences
|
Slejko, Julia F.
|
|
|
|
5 |
p. 569-579
|
artikel
|
| 74 |
Process- and Outcome-Based Financial Incentives to Improve Self-Management and Glycemic Control in People with Type 2 Diabetes in Singapore: A Randomized Controlled Trial
|
Bilger, Marcel
|
|
|
|
5 |
p. 555-567
|
artikel
|
| 75 |
Psychometric Validation of the Heart Failure Caregiver Questionnaire (HF-CQ®)
|
Strömberg, Anna
|
|
2017
|
|
5 |
p. 579-592
|
artikel
|
| 76 |
Qualitative Assessment of the Symptoms and Impact of Pancreatic Exocrine Insufficiency (PEI) to Inform the Development of a Patient-Reported Outcome (PRO) Instrument
|
Johnson, Colin D.
|
|
2017
|
|
5 |
p. 615-628
|
artikel
|
| 77 |
Qualitative Research on Fatigue Associated with Depression: Content Validity of the Fatigue Associated with Depression Questionnaire (FAsD-V2)
|
Matza, Louis S.
|
|
2015
|
|
5 |
p. 433-443
|
artikel
|
| 78 |
Quantitative Preferences for Lung Cancer Treatment from the Patients’ Perspective: A Systematic Review
|
Sugitani, Yasuo
|
|
|
|
5 |
p. 521-536
|
artikel
|
| 79 |
Real World Survey of Patient Engagement Status in Clinical Research: The First Input from Japan
|
Tanemura, Nanae
|
|
|
|
5 |
p. 623-632
|
artikel
|
| 80 |
Revolutionizing Informed Consent: Empowering Patients with Certified Decision Aids
|
Pope, Thaddeus Mason
|
|
2017
|
|
5 |
p. 537-539
|
artikel
|
| 81 |
Sample Size Requirements for Discrete-Choice Experiments in Healthcare: a Practical Guide
|
Bekker-Grob, Esther W. de
|
|
2015
|
|
5 |
p. 373-384
|
artikel
|
| 82 |
Should I Have Adjuvant Immunotherapy? An Interview Study Among Adults with Resected Stage 3 Melanoma and Their Partners
|
Livingstone, Ann
|
|
|
|
5 |
p. 635-647
|
artikel
|
| 83 |
Stakeholder-Engaged Derivation of Patient-Informed Value Elements
|
dosReis, Susan
|
|
|
|
5 |
p. 611-621
|
artikel
|
| 84 |
Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study
|
Miller, Jean Louise
|
|
2016
|
|
5 |
p. 457-464
|
artikel
|
| 85 |
Support Tools for Preference-Sensitive Decisions in Healthcare: Where Are We? Where Do We Go? How Do We Get There?
|
Ostermann, Jan
|
|
2019
|
|
5 |
p. 439-443
|
artikel
|
| 86 |
Symposium Title: Preference Evidence for Regulatory Decisions
|
Gonzalez, Juan Marcos
|
|
2018
|
|
5 |
p. 467-473
|
artikel
|
| 87 |
Symptoms and Impacts in Non-Metastatic Castration-Resistant Prostate Cancer: Qualitative Study Findings
|
Tomaszewski, Erin L.
|
|
2017
|
|
5 |
p. 567-578
|
artikel
|
| 88 |
Systematic Review of Public Preferences for the Allocation of Donor Organs for Transplantation: Principles of Distributive Justice
|
Oedingen, Carina
|
|
2019
|
|
5 |
p. 475-489
|
artikel
|
| 89 |
The Ball is in Your Court: Agenda for Research to Advance the Science of Patient Preferences in the Regulatory Review of Medical Devices in the United States
|
Levitan, Bennett
|
|
2017
|
|
5 |
p. 531-536
|
artikel
|
| 90 |
The Impact of Reproductive Issues on Preferences of Women with Relapsing Multiple Sclerosis for Disease-Modifying Treatments
|
Webb, Edward J. D.
|
|
|
|
5 |
p. 583-597
|
artikel
|
| 91 |
Themes that Determine Quality of Life in Patients with Peripheral Arterial Disease: A Systematic Review
|
Aber, Ahmed
|
|
2018
|
|
5 |
p. 489-502
|
artikel
|
| 92 |
The Parker Model: Applying a Qualitative Three-Step Approach to Optimally Utilize Input from Stakeholders When Introducing New Device Technologies in the Management of Chronic Rheumatic Diseases
|
Jørgensen, Tanja S.
|
|
2018
|
|
5 |
p. 515-526
|
artikel
|
| 93 |
The Patient Voice: At the Intersection of a US Regulatory Revolution
|
Pitts, Peter J.
|
|
2016
|
|
5 |
p. 373-377
|
artikel
|
| 94 |
The Patient Voice: Exploring Treatment Preferences in Participants with Mild Cognitive Concerns to Inform Regulatory Decision Making
|
Mansfield, Carol
|
|
|
|
5 |
p. 551-564
|
artikel
|
| 95 |
The Successful Return-To-Work Questionnaire for Cancer Survivors (I-RTW_CS): Development, Validity and Reproducibility
|
Greidanus, Michiel A.
|
|
|
|
5 |
p. 567-582
|
artikel
|
| 96 |
The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment
|
Whittal, Amanda
|
|
|
|
5 |
p. 485-503
|
artikel
|
| 97 |
Time for Tele-TTO? Lessons Learned From Digital Interviewer-Assisted Time Trade-Off Data Collection
|
Lipman, Stefan A.
|
|
|
|
5 |
p. 459-469
|
artikel
|
| 98 |
Towards Accurate Prediction of Healthcare Choices: The INTERSOCIAL Project
|
de Bekker-Grob, Esther W.
|
|
|
|
5 |
p. 509-512
|
artikel
|
| 99 |
Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States
|
Thorley, Eileen Mack
|
|
2018
|
|
5 |
p. 547-559
|
artikel
|
| 100 |
Understanding Patient Preferences in Medication Nonadherence: A Review of Stated Preference Data
|
Laba, Tracey-Lea
|
|
2014
|
|
5 |
p. 385-395
|
artikel
|
| 101 |
Understanding the Patient Perspective of Seizure Severity in Epilepsy: Development of a Conceptual Model
|
Borghs, Simon
|
|
2016
|
|
5 |
p. 419-431
|
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